Helping Rob cope with Tetraplegia

Day of meetings

In the "potting shed" meeting with ICCM care agency

In the “potting shed” meeting with ICCM care agency

Tuesday was full of meetings. First of all met with the care agency ICCM who have been chosen to provide Rob’s carers or support workers as they call them. Rob will have 2 support workers with him 24/7 from a team of 10 who will be specifically recruited for him. Initial interviews are already planned and then Rob gets involved in selection at the second stage which is scheduled for next week (photos alone will not do says Rob’s mum!!). All support workers then get trained up with Rob in Salisbury by the Spinal nurses. A quick break for lunch and then off to the goal meeting with the whole medical and discharge team. The outcome of this was to say that Rob is making real progress as he is up in his chair for 10 hours a day and on a dry circuit virtually the whole time. Essential equipment for home from wheelchair to ventilators have been ordered and so still on to aim for end March/early April to go back home. The main stumbling block to the timescale is the fact that the urology department still have not looked into Rob’s kidney stones which have to be removed prior to discharge. It seems that internal referrals in the hospital go under the waiting list radar and meanwhile Rob continues to get more and stronger spasms along with the pain and potential for autonomic dysreflexia that they cause. The care from the spinal team is excellent yet they have supported our formal complaint to try to get something done – it is crazy that this delay leaves Rob at risk and leaves another injured patient, as Rob was, lying in intensive care somewhere waiting to get into the spinal unit.