Helping Rob cope with Tetraplegia

Confined to bed

The problem of a pressure sore is unbelievably cruel for Rob. He was trying to live as full a life as possible and looking forward to a busy Christmas schedule when the true reality of the fact that you cannot put any pressure on a pressure sore came home. Under the guidance of his care team Rob had been trying to work on with various pressure relieving techniques but eventually advice from the spinal unit at Salisbury was taken who said the only way forward was to totally keep off the sore. That meant total bed rest, even for his annual trip to Salisbury for a medical check up.

Not the way I wanted to travel to Salisbury

Not the way I wanted to travel to Salisbury

Calling my tutor from the ambulance

Calling my tutor from the ambulance

So rather than going back to Salisbury and showing them what a skilled power chair user he had become a private ambulance was hired and Rob was pushed round in a bed from consultant to x-ray to ultrasound and the wards. Rob was not deterred from his other job whilst at Salisbury which was to demonstrate to a patient there how he uses dragon and smart nav on his computer to do his work and keep in touch with friends. The aim which was certainly achieved was to give an insight into what can actually be done over time albeit with hard work and patience.

Getting some fresh air

Getting some fresh air

Pebbles sharing the bed

Pebbles sharing the bed

So Rob has gone from full Uni days with evening visits to law firms, followed by a few days bed rest because of the sore and then 3 nurses standing round the bed saying its ok to get up, to now facing reality and the potential of longer on bed rest than he actually spent in Frenchay 2 years ago. Rob’s determination to do the right thing now with strict bed rest to let the sore fully heal is undaunted even for Christmas Day. The “getting up” now is to brave the elements across the patio whilst being pushed in his bed from one room to another for the day. Family, friends and pets have rallied round with old school mates even managing to make his Birthday a fun night which went on to the small hours long after the baked Alaska was eaten.

22 today

22 today

Mum's sparkling baked Alaska

Mum’s sparkling baked Alaska