Helping Rob cope with Tetraplegia

A day to forget followed by a day to remember

Rob was too tired to get out of bed on Sunday having been kept awake for the past few nights by the ventilator alarming. It had been alarming because of leakage around the new trachy that had been put in. On the Monday it was realised that the tiredness was due to the leakage and not the alarms. That meant yet another change of trachy and the cuff had to be inflated for the morning to ensure full lung inflation – a side effect of an inflated cuff is that Rob was unable to talk- that certainly felt like a backward step. The afternoon improved and Rob was back to normal and tried to take over the reception duties at the ward.

Reception duty in Avon ward

Reception duty in Avon ward


Tuesday was good from start to finish. A very special aunt and uncle, Buffy and Philip arrived from New Zealand to see Rob – Rob had spent several very active months of his gap year staying with them in Rangiora where he had the time of his life. Buffy, following her last visit to the UK, had vowed never to travel back again due to the distance so it is a measure of the relationship that built up during that time for Buffy and Philip to make the trip to see Rob.
Mick Donnegan from SpecialEffect came for another support visit for Rob on his eyegaze. The major update this time was to get kindle books enabled on the system so now downloading and reading books is added to the list of things that Rob can do for himself.
Buffy and Philip having just flown in from NZ

Buffy and Philip having just flown in from NZ


The day ended with fantastic news which Rob had been nervously waiting for – having decided that York University was too far away Rob had submitted a new UCAS form a month ago. It brought a huge smile to his face to receive an unconditional offer from Bristol University to start a degree in Politics and Philosophy this September.